We are very happy to have been asked to support and help provide volunteers for the Children’s Hospital Challenge 2015. The challenge has been organised by a friend of Lubas Medical Adrian Harvie in order to raise awareness and help increase funding for a rare illness known as Alexander Disease. Adrian explains below but what we’re looking for is a physio to help the team over the course of the 10 days. Meals and accommodation would be provided and you would be helping a very worthy cause. Please read on for further details.
I’d like to introduce you to a challenge that I’m organising this year.
Over the course of ten days from July the 31stof this year, myself and 7 friends will take on the task of cycling to every NHS children’s’ hospital in England and Wales. We will cover over 1,000 miles whilst visiting 17 children’s’ hospitals in 13 cities including Cardiff, Birmingham, London, Newcastle and Manchester.
The inspiration behind this challenge is my three-year-old daughter, Emilia, who has a rare genetic disorder called Alexander Disease which affects the nervous system. It is a form of Leukodystrophy that affects just 500 people worldwide. Unfortunately, the prognosis is not great and children diagnosed with this disease rarely live past the age of 6 or 7.
Our aim in doing this challenge is to raise as much awareness as possible about the disease so that fundraising can be achieved, which in turn can be donated to research and children that are affected by this illness. We would also like to highlight the fantastic work done by children’s hospitals throughout the country by donating toys and books to their children’s’ wards when we arrive.
Awareness of this disease is just as important as raising money to fund research, and as a result, we have created the following accounts in an attempt to achieve this. Please ‘like’ and ‘share’ our Facebook page, follow us on twitter and check out our website.
Twitter – @CHC2015
Facebook – www.facebook.com/childrenshospitalchallenge
We have also set up a donation page via Givey.com and should you wish to donate please click here. All money raised will go to a charity called Climb who is the national information centre for metabolic diseases. The climb will donate all of the challenge’s proceeds to a restricted funds pot where researchers can apply for the funds in order to financially back their research project into Alexander Disease.
The challenge has generated great public backing from a number of sources with Cardiff City Football Club, BBC Wales, ITV, National and local press and GMTV all wanting to support and promote the challenge. We are however still on the lookout for a main sponsor of the event – predominantly to help with purchasing the bikes. The sponsor will have their logo prominent on all media work we do, on the support vehicles that will follow us, our riding clothes and equipment and at all fundraising events, we will hold. Once we have completed the challenge we will sell the bikes and return the proceeds to the sponsor or donate to the cause. If you know of a person or company that would be interested in potentially supporting us please let me know.
As mentioned various media sources have shown great interest in this story already and below are links to an article in the Wales Online Newspaper and a BBC Interview:
Thank you for taking the time to read this mail and I hope you can support this very personal challenge for me whether it is in the form of awareness or donations.
If you or anyone you know would be interested in helping out Adrian and his team, please contact us firstname.lastname@example.org.